Fundjava e anëtarëve të DEBRA 2025
Thank you so much to everyone who joined us for the DEBRA UK Members’ Weekend 2025! It was a wonderful weekend, with loads happening as hundreds of members of the EB community gathered together at Drayton Manor Resort.
This event is such a special opportunity for everyone to connect with others living with EB. It’s a chance to learn from one another, share experiences and inspire each other, and make new friends. It’s also a time where members can meet with DEBRA’s EB Community Support Team and EB healthcare and research experts. Thanks to our sponsors from different healthcare companies attending as well, members could find out about the latest healthcare innovations too.
It’s hard to choose our highlights from the event, but some include…
- Research presentations from some of the researchers DEBRA UK is currently funding.
- Workshops with our fantastic EB specialist nurses.
- Physiotherapy sessions for adults living with EB and carers.
- Dance and EB-friendly exercise sessions with Synergy Dance.
- Superhero teddy transformations.
- The samba band musical workshop, with a host of instruments to try.
- Edhe me shume!
The video below is a lovely look at just a few highlights from the day:
We’ll soon have recordings of the presentations on our website, so you can catch up if you missed any on the day.
We’d like to say a huge thank you to everyone who got involved and helped make this such an amazing event. Thank you to all the members who travelled to be there, everyone who helped organise the day’s activities, all our speakers and workshop leaders, and our amazing volunteers.
We would love to hear any feedback you have to help us plan for our next Members’ Weekend, so we know what we did well and what we can do better. Please spare a little of your time to plotësoni formularin tonë të komenteve. And if you do, you’ll even be entered into a prize draw!
Një falenderim i fundit për sponsorët tanë!
We would also like to say thank you to all our sponsors for supporting the DEBRA UK Members’ Weekend 2025. The generosity of our sponsors and corporate partners is essential for us to provide events like this for our members.
Thank you to Bullen Healthcare, Flen Health, Krystal Biotech, Mölnlycke Health Care, Peninsula UK, and Urgo Medical, and a special mention to RHEACELL and Chiesi Limited. Chiesi Limited has provided financial grants to support DEBRA UK’s various EB awareness campaigns and the development of resources and materials for use at daytime workshops at DEBRA UK’s annual Members’ Weekend.
Ju mund të gjeni më shumë informacion se si kompania juaj mund të mbështesë DEBRA duke vizituar tonë faqja e partneriteteve të korporatave.